Factores de estigmatização de jovens com epilepsia dos 20 aos 24 anos de idade no sistema familiar, assistidos no Serviço de Neurologia do Hospital Central de Maputo, no período de 2019 a 2020

Abstract

The present dissertation is one of the essential requirements for the completion of the Master's degree, at Universidade Eduardo Mondlane UEM, according to the postgraduate regulation, (2020 P.23), it has as its theme: “Factors of Stigmatization of Young People with Epilepsy from 20 to 24 years old in the Family System, assisted at the Neurology Service of the Maputo Central Hospital in the year 2019 to 2020”. This study has as its research target group, young people with epilepsy. To analyze factors of stigmatization of young people with epilepsy in the family system was the general objective; thus, this goal influenced the choice of approach to the phenomenon in methodological terms. The qualitative method proved to be fundamental since the factors that lead to the stigmatization of the young epileptics under analysis could only be understood based on their experience with the disease through their reports. In the field research, it was decided to use the semi-structured interview, the family genogram and the Test Fast. With these tools, it was possible to gather the perceptions and meanings of the disease for patients and their family system. Likewise, he visualized the organization of the family system in terms of hierarchical structure and level of cohesion. The study concluded that the factors of stigma in epilepsy for the target group are associated with a lack of scientific knowledge about the disease and its causes, prejudiced ideas, such as the punishment of ancestors, non-compliance with a ritual in the breast. family by the parents or by the patient. Another important consideration that contributes to stigma within the family system is the way in which the disease manifests itself when the patient has a crisis, since this is unpredictable, which causes fear and withdrawal from their family members at a time of great need. by the patient.